Mar 30, 2012 0 Share

Introduction to Roadmaps


Computer keyboard with green "Find Way" key and mini GPS.
iStockphoto

Welcome to our Transition Roadmaps.

The pages are designed to outline for families a step by step process to coordinate transition services in their states. Many of these services are mandated by law, but too often do not exist in any meaningful way. The pages follow a template that attempts to show which state, local, and national resources should be tied together at what points during the process. As we were searching through various state Department of Education, Department of Developmental Disabilities, and Department of Vocational Rehabilitation websites we learned a few things worth noting:

  • All states have these agencies or departments, but they go by different names in different states. This can be confusing for some people who are looking for resources from a state agency whose name does not seem to exist in their state.
  • There is no shortage of quality documentation about what should happen during transition, and reading the Autism Speaks Transition Toolkit is a great way to start the process. If fact, the more we looked, the more overwhelmed by resources we became. So what we are endeavoring to do here is boil the process down to its bare bones.
  • Some states have robust sites that include publications written specifically for people with autism and the Transition process, usually found in the Department of Education or other school system sites. However, sometimes this type of information is located on the Developmental Disabilities sites. Other states have very few resources devoted to this topic.
  • If you live in a state that has relatively few resources you may wish to “borrow” some of what we consider to be the Best of Breed resources from a few other states. Two resources stand out, in our opinion:
  1. The Thompson Center at the University of Missouri has created a Roadmap to the Future: Transitioning into Adulthood with ASD that has a modular format, some of which are specific to Missouri but many of which are national in scope, such as applying for SSI. The roadmap is quite comprehensive and could be used in conjunction with the AA16 roadmap page of your state.
  2. Ohio Center for Autism and Low Incidence (OCALI) has created Transitions to Adulthood: Guidelines for Individuals With Autism Spectrum Disorder , an extensive PDF that rivals the Transition Toolkit for thoroughness and rigor. A more unique offering on their website is a series of Transition webcasts with experts and autism advocates. We highly recommend listening to Gary Tonks talk about Medicaid and Medicaid Waivers, to Gary Iler talk about what the application process for SSI is really like, and to Maureen Iler talk about Community Living Issues.

We will update state pages over time. If you know of quality state-specific resources that we have missed, please send them to us with a line or two about why you find them helpful. 

Good luck navigating Transition in your state.